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🎧 A new episode of ERNs on Air is now live! Join Ines Hernando from the EURORDIS ERNs & Healthcare team in conversation with Olivia Spivack, researcher and ERN Implementation Coordinator at ERN ERNICA, and Mirthe Klein Haneveld, researcher and member of the ERN ITHACA guideline working group. Together, they dive into the Patient Partnership Framework for the European Reference Networks (ERNs) – exploring why it was created, how it works in practice, and what it takes to build genuine collaborat

🎧 A new episode of ERNs on Air is now live! Join Ines Hernando from the EURORDIS ERNs & Healthcare team in conversation with Olivia Spivack, researcher and ERN Implementation Coordinator at ERN ERNICA, and Mirthe Klein Haneveld, researcher and member of the ERN ITHACA guideline working group. Together, they dive into the Patient Partnership Framework for the European Reference Networks (ERNs) – exploring why it was created, how it works in practice, and what it takes to build genuine collaborat

196 views11 months ago

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Inside the ERNs – Q&A series - TRAILER

Inside the ERNs – Q&A series - TRAILER

254 views4 months ago

🌍 How can we make healthcare systems better equipped to care for people living with rare diseases? In our final #ERNsOnAir episode of 2024, Inez Hernando (ERN and Healthcare Director at EURORDIS) speaks with César Hernández García (Director General at the Spanish Ministry of Health) and Dorica Dan (President of the Romanian Rare Disease National Alliance and patient lead in ERN ITHACA). Their discussion centres on the potential impact of the Jardin Joint Action project, aiming to incorpora

🌍 How can we make healthcare systems better equipped to care for people living with rare diseases? In our final #ERNsOnAir episode of 2024, Inez Hernando (ERN and Healthcare Director at EURORDIS) speaks with César Hernández García (Director General at the Spanish Ministry of Health) and Dorica Dan (President of the Romanian Rare Disease National Alliance and patient lead in ERN ITHACA). Their discussion centres on the potential impact of the Jardin Joint Action project, aiming to incorpora

92 viewsDec 16, 2024

FacebookEURORDIS-Rare Diseases Europe

We are excited to announce the winners of the 2025 Patient Partnership Good Practice Challenge! 🎉 This initiative aims to foster peer learning on patient partnership in the European Reference Networks (ERNs) by showcasing outstanding examples of collaboration between patient representatives and healthcare professionals involved the Networks. After the evaluation by a Selection Committee, three practices have won the challenge: 💡 ERN-LUNG - European Reference Network for rare respiratory diseas

We are excited to announce the winners of the 2025 Patient Partnership Good Practice Challenge! 🎉 This initiative aims to foster peer learning on patient partnership in the European Reference Networks (ERNs) by showcasing outstanding examples of collaboration between patient representatives and healthcare professionals involved the Networks. After the evaluation by a Selection Committee, three practices have won the challenge: 💡 ERN-LUNG - European Reference Network for rare respiratory diseas

128 viewsMar 2, 2025

FacebookEURORDIS-Rare Diseases Europe

O Centro Clínico de Odivelas, fundado em 1979, lançou o desafio à equipa ERN para fazer um restyling da sua clínica na principal avenida de Odivelas. O desafio foi manter toda a estrutura já existente, bem como toda a sua funcionalidade, mas tornar este espaço mais moderno, mais apelativo e mais confortável aos seus utentes e funcionários. Foram preservados todos os arcos existentes dado uma nova dinâmica ao teto da clínica com uma conjugação de pintura, construção de sancas e iluminação. Todo o

O Centro Clínico de Odivelas, fundado em 1979, lançou o desafio à equipa ERN para fazer um restyling da sua clínica na principal avenida de Odivelas. O desafio foi manter toda a estrutura já existente, bem como toda a sua funcionalidade, mas tornar este espaço mais moderno, mais apelativo e mais confortável aos seus utentes e funcionários. Foram preservados todos os arcos existentes dado uma nova dinâmica ao teto da clínica com uma conjugação de pintura, construção de sancas e iluminação. Todo o

720 viewsMay 18, 2023

FacebookERN, Lda

ERN Holding | Dijital İş Güvenliği Dönemi

ERN Holding | Dijital İş Güvenliği Dönemi

YouTubeERN Holding

🌟 Being diagnosed with a rare disease was life-changing for John. He had never heard of penile cancer until his own diagnosis. After months of misdiagnosis, he faced profound physical and psychological challenges. Although surgery removed the cancer, it left him with a life-limiting and incurable condition – lymphoedema. 💬 “With a rare disease, you are unlikely to meet anyone with the same condition. It can be a lonely place, shaped by stigma and negative attitudes that stop people seeking tre

🌟 Being diagnosed with a rare disease was life-changing for John. He had never heard of penile cancer until his own diagnosis. After months of misdiagnosis, he faced profound physical and psychological challenges. Although surgery removed the cancer, it left him with a life-limiting and incurable condition – lymphoedema. 💬 “With a rare disease, you are unlikely to meet anyone with the same condition. It can be a lonely place, shaped by stigma and negative attitudes that stop people seeking tre

383 views8 months ago

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Coping with Yeast Infection & BV Anxiety

87.8K views5 months ago

TikTokern.beingreal

I'm the MVP of ERN #euren #bloodstrikeambassador #bloodstrikelatam

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Medium Tealight Blue Enamel/Candle Urn for Human Ash - Glossy Blue Urn for Human Ash - Cremation Urns/Keepsakes for Ashes - Ash Holders - ERN - Earns

Happy before u, happy after #yowes #ern #shorts

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“Why Was Ray J Fighting Supa Hot Fire?! 😂 #rayj”

1.7K views5 months ago

YouTubeErn & Iso

EpiPen price explained: What is an EpiPen and why so expensive?

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TikTokdoctormyro

Never again #fy #healthcare #medsurg #nursing #hospital | med surg explained

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POV: Getting Triage at a Level III Trauma Center | Nursing Student

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TikTokshakurology

Spinal Deformities Explained 🎥 Video by Dr. Rodion Narkolayev 🏅 Board Certified Physical Therapist 💪 Certified Advanced Manual Therapist 📧 Email: hello@truebodypt.com 📍 Address: 65-36 99th Street, Suite #1D Rego Park, New York 11374 📞 Phone: 718-897-6869 917-886-5667 ⚠ Disclaimer: This video is for educational purposes only and does not replace professional medical advice. If you experience pain or have a medical condition, please consult a qualified healthcare professional before trying a

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BigXThaPlug Talks About His Mental Health #foryou #fyp #nfl #mensmentalhealth #mentalhealth

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4 Hidden Habits That Harm Your Kidneys Every Day

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They Turned His Index Finger Into a Thumb

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YouTubeDr. Healthcare

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