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Jesy Nelson Shares What Led to Her Twins’ Spinal Muscular Atrophy Diagnosis

Symptoms of spinal muscular atrophy as Jesy Nelson emotionally reveals twins will 'never walk'

36K views · 196 reactions | Kennedy and her brother Lincoln have a rare disease called MPS1, hurler syndrome. MPS1 causes the body to not produce certain enzymes that are needed in the breakdown of the body’s garbage. Essentially, the garbage builds up with no garbage truck to take it out. This has an effect on every part of the body, shortening life expectancy. There is no cure for MPS1. Our mission is to raise awareness and find a cure. | The Kennedy Ladd Foundation, Inc. | Facebook

307K views · 1.5K reactions | Kennedy has a rare disease called MPS1 that affects every part of her body. Because of this, she had to have double hip, knee, and ankle surgery. We are so proud of her for finally walking without assistance! She has come so far and we know the long term effects will be so worth it! Follow us to keep up with our story!﫶 | The Kennedy Ladd Foundation, Inc. | Facebook

Can Biogen Outdo Its Own Spinal Muscular Atrophy Drug?

SMA: Symptoms to Look For

Spinal Muscular Atrophy (SMA) | Biogen